Chronic Illness


~Fibromyalgia~
and
~Lupus~





In 2000 I began having odd symptoms of exhaustion, insomnia,
chronic widespread pain, and earth shattering panic attacks.
No physician could seem to find an underlining reason for these events. I began passing out in the most unlikely places when all my symptoms would merge together.

~Wal*Mart, the beach, my home~

These were just a few of the places
I would awake, on the floor, with
strangers staring down out me!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Of course, the beach pass out was by far the worst and funniest!
The lifeguards and paramedics were awesome.
But, having to ask the female paramedic if "everything was where it was supposed to be, (meaning my swim suit!!!)
was a little embarrassing!
(Top and bottom were right where they belonged :) !
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

In 2002, I had surgery for
Spinal Stenosis.
(Between 1989-2007 I have had 6 surgeries)
Special cervical vertebrae (C1, C2, and C7)I am grateful for the CADAVER Bone that was donated for my surgery.
I have always wondered about the donor
and their family.



C1 or atlas: The Atlas is the topmost vertebra, and – along with C2 – forms the joint connecting the skull and spine. Its chief peculiarity is that it has no body, and this is due to the fact that the body of the atlas has fused with that of the next vertebra.

C2 or axis: It forms the pivot upon which C1 rotates. The most distinctive characteristic of this bone is the strong odontoid process (dens) which rises perpendicularly from the upper surface of the body. The body is deeper in front than behind, and prolonged downward anteriorly so as to overlap the upper and front part of the third vertebra.

C7 or vertebra prominens: The most distinctive characteristic of this vertebra is the existence of a long and prominent spinous process, hence the name vertebra prominens. In some subjects, the seventh cervical vertebra is associated with an abnormal pair of ribs, known as cervical ribs. These ribs are usually small, but may occasionally compress blood vessels (such as the subclavian artery) or nerves in the brachial plexus, causing ischemic muscle pain, numbness, tingling, and weakness in the upper limb.
 


The surgery was a necessity.
After working with horses, in such a large capacity, for so many years,
I had done a lot of damage to my poor body!

I had such incredible neck and back pain,
it is a mystery to me how I even worked!
I had also lost all feeling in my left arm
 because of a pinched
nerve.

******
SPINAL STENOSIS


General term denoting narrowing of the spinal canal in the lumbar area leading to nerve root compromise; term often used for developmental abnormality that leaves a narrow, bony canal. There are four subgroups of this condition: achondroplastic stenosis, constitutional stenosis, degenerative stenosis, and combined stenosis.
******

Six weeks into my recovery from surgery,
we were broadsided by a semi truck, moving at 55mph!

It was also as if the healing that had taken place
had to begin all over.
Six weeks later Hurricane Frances hit!
And we moved to Tennessee.
What a summer.....
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
There are many physician theories on
Fibromyalgia.

*Some being surgeries to our bodies
promote trauma in itself.
*The second is multiple Soft Tissue injuries.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
In 2006, while J was in Dallas, I awoke one morning unable
to get out of bed.
Literally my mind was saying
"Get UP"
but my body would not listen.
I had dogs, cats and horses to feed.
It took me two hours to finally sit and then stand.
I had overwhelming pain in my feet and hands.
But, then a week later the pain gravitated to other
parts of my body.

What in the world was wrong with me?


Physician after physician could not find anything.
Until in 2007, a change in our insurance took me to a young
doctor who referred me to Rheumatologist !


In December 2007, I finally got my diagnoses.

After being told I may possibly have Multiple Sclerosis, Parkinson's etc.

It was a relief....

I was finally diagnosed with Fibromyalgia
I also have Connective Tissue Disease
and Rheumatoid Arthritis.





~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~



Over the past few years I have learned to deal with Fibro,
and all it's crappy symptoms.

I take a handful of meds each day.
Purchased with no insurance.
But, I am grateful that one of my meds are
given to me as part of a pharmaceutical study.
I never know when I will go into a "Fibro Flare"
which is the common name for it.
My Flares can last from a few days to a month.
I just have to deal with it.
I have insomnia that will only let me sleep a couple hours a day,
for weeks.
I have chronic unbearable pain, at times.
I cannot grasp things with my hands.
It takes me HOURS to do simple chores.
I am clumsy, and bump into things!
I cannot eat solid foods.
I exist on water, Popsicles, Jello, chicken soup and Pepto!
I cannot concentrate enough to read or watch TV.
Or even visit my beloved Blogs...
Carrying on conversations is very hard because
of my inability to concentrate.


I hope if you know someone with these symptoms, you will
check out the link I provided below.

It may be a friend.

******
It may be you.

In a Flare, all my symptoms rear their ugly heads.
And J, my sweet guy....
Has to to take over everything!

Please take a moment to check out this link,

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Living with Fibromyalgia is sometimes just a bad curse!
I have to admit, on The Dog Days I feel sorry for myself.

But, truly.
In spite of everything, it is just a minor inconvenience.


But, then I become inspired.
Because I read NieNie
And my trials are nothing compared to hers!
Oh, how I admire this women.
I admire her Faith.
Someday, I will meet her in person.
And we shall give one another gentle hugs....




xo,